
The opening of the story about “your children” and “your” experience watching one of them die from the measles.
DISCUSSION STARTER: This is a good opportunity to have students read the story, “This is How a Child Dies of Measles,” before digging into this post to see how they feel about the approach, particularly if they are unaware of the truth of the story.
(The story is behind a paywall, so you might need to get creative to gain full access to it. Some school libraries have it on file, while some of you might have your own subscription. Maybe it’s even worth it to pay the $1 for six months thing and then cancel after the class. Just a head’s up in case you hadn’t planned for this.)
We did this a couple times over the years in my features classes, where they read the standard “almost journalism” stories of “Hack Heaven,” “Jimmy’s World” and “A Rape on Campus.”
Once they read through it and you make the reveal, a discussion about their thoughts, their concerns and maybe their willingness to do or not do something like this could be good. Then, if they want to pick through the blog post and argue with me, that could be fun, too.
THE LEAD: The story, “This is How a Child Dies of Measles,” by The Atlantic’s Elizabeth Bruenig has gained significant attention for the way in which it walks the readers through a child contracting the measles and eventually dying of it.
When I initially read Bruenig’s story, I was stunned: An Atlantic staff writer’s unvaccinated child had died of measles in the 2020s, and now she was writing about it? At the end of Bruenig’s piece, though, there’s an editor’s note: “This story is based on extensive reporting and interviews with physicians, including those who have cared directly for patients with measles.” That was the point when I sent a gift link to my mom group: “as far as I can tell this piece is fiction. What do we think about this choice? I am very conflicted!!!” My conflict stemmed from my concern that, though the piece was heavily researched, it was not a true story.
THE BACKGROUND: The story is written in second person and provides excruciatingly detailed information about everything from the way in which the illness can be passed among children, to the scene-setting elements of propping a kid up on a couch to watch “Bluey.”
Each paragraph provides the reader with a more and more desperate sense of inevitability in terms of “your” children suffering from to something we thought we had eradicated.
Given your son’s fever, runny nose, and evident discomfort, you feel a grim sense of resignation when his measles test comes back positive. You are, however, alarmed when you discover there’s nothing his doctors can do about it. Had he been seen by a doctor within 72 hours of his first exposure, they could have given him a prophylactic dose of the MMR vaccine to protect him from infection. But it’s too late for that now.
(SIDE NOTE: Few writing approaches are more jarring and risky than the use of second person. That’s true when it comes to simple things like, “UWO is hosting a blood drive and you should donate,” but even more so with big, complicated stories.
I love Jay McInerney’s work from soup to nuts, but his novel “Bright Lights, Big City” is a massively painful read for me because “you” are the main character and “you” are doing stuff that, quite frankly, I can’t really imagine “me” doing, not the least of which is referring to a woman as “the sexual equivalent of fast food.”)
The finality of the piece is like one of those “Friday the 13th” movies: Just when you think this is all over, the terrifying specter rises again to finish off its victim:
For roughly eight years, you will believe that your family made it through this crisis without suffering a tragedy…
As the neurologist examines the results, she will note the presence of Radermecker complexes: periodic spikes in electrical activity that correlate with the muscle spasms that have become disruptive. She will order a test of his cerebrospinal fluid to confirm what she suspects: The measles never really left your son. Instead, the virus mutated and spread through the synapses between his brain cells, steadily damaging brain tissue long after he seemed to recover.
You will be sitting down in an exam room when the neurologist delivers the diagnosis of subacute sclerosing panencephalitis, a rare measles complication that leads to irreversible degeneration of the brain. There are treatments but no cure, the neurologist will tell you. She tells you that your son will continue to lose brain function as time passes, resulting in seizures, severe dementia, and, in a matter of two or three years, death.
After all that, you get kind of a semi-disclaimer that doesn’t exactly disabuse of you of the notion that this is real:
This story is based on extensive reporting and interviews with physicians, including those who have cared directly for patients with measles.
THE AUTHOR EXPLAINS: In a Q and A with the folks from the Nieman Lab, Bruenig walks through her approach to the topic and her decisions that led to the piece. She then makes kind of a sweeping statement about the greater good she feels she is doing with this fact-based fiction:
Owen: Where do you expect this piece to be shared and who do you expect to read it? Do you think people who choose not to vaccinate their kids will read it, and if so, how will they come across it? Have you heard any reactions from readers so far?
Bruenig: I have heard from several readers, one of whom had a heartbreaking experience with measles involving a family friend who died of the virus. People have been generally very encouraging! I have no doubt that there are a lot of people out there who are unhappy with the story or reject its premises, and they are entitled to their interpretations. I get it.But my job is to report the truth about the world — and I use all kinds of literary, and narrative devices to do that. I do it because telling the truth is important in its own right, whether or not anyone finds it persuasive.
I mean, yes, those kinds of people exist, and yes, those kinds of concerns are real, but again, you can’t just Frankenstein a bunch of pieces of people together and call it good.
Also, the supposed “disclaimer” doesn’t come right out and say, “This didn’t happen to one kid, but rather is a collection of all of the terrible stuff that can happen to an unvaccinated kid.” It’s almost like the author is trying to avoid accusations of writing fiction while doing as little as possible to make it clear that this literally did not happen.
When we are deceptive, we end up doing more harm than good. As I made the point in an earlier post, when my students read stories like “Jimmy’s World” and “A Rape on Campus,” they were angry, hurt, scared and otherwise emotionally wrought. When it came to light that Jimmy didn’t happen and that the attack on Jackie did not happen, they were really, really ticked off. They also felt less likely to trust the pieces they would read in the future.
As much as I prefer “non-denominational skepticism,” I definitely don’t want to prod it along with some borderline fraud.
Second Problem – Hyperbole: This comes back to the whole amalgamation of potential impacts issue, and how piling it all on to this one hypothetical kid is really overkill.
A number of the things she lists as symptoms of measles happen in many cases, ranging from the spots and fever to the cough and pain. However, when we get to the areas of pneumonia, we’re down to about 6 percent of all cases that end up here. Even more, the degenerative brain disorder that flares up years later happens to about 1 in 1,000 measles victims. In justifying the conclusion where “this is how your kid eventually dies,” Bruenig said:
I wanted to highlight this complication specifically because I sense that there’s widespread belief among anti-vax parents that since most healthy children will survive a measles infection, there are no important long-term consequences. But that’s simply not the case. Measles can seriously damage the body, and in rare and tragic cases, can result in death many years after the symptoms pass.
OK, but that’s a massive outlier for this disease and, again, that’s on top of the 83 other things that could or couldn’t happen that you saddled “your child” with in this story.
It would be like me stating, “I laid in the hospital, facing the grim specter of death. As the pain shot from my gallbladder, time ticked away in the day, each moment a chance I might die. Surgery, hours away, I pondered what would happen when my light was extinguished by an organ I’d long forgotten I had.”
Well, yes, I was in the hospital and yes, that gallbladder hurt like hellfire. And yes, if a person’s gallbladder ruptures, there is a chance the person goes septic and dies. However, that’s somewhere between 2 and 11 percent of all cases. I could make the argument that it was for the larger good that I painted this hyperbolic picture, hoping people will take gallbladder attacks seriously. However, I think most people would just say I was being a drama queen.
Third Problem – Laziness: I wholeheartedly believe in telling stories in journalism for the greater good of society. I also know there are an unfortunate number of children who have died after contracting measles. Telling a story about these deaths might inspire people to vaccinate, to change their minds about the severity of the illness or otherwise impact a broader discussion on the topic.
So, don’t be lazy. Go find an ACTUAL story of a measles death that happened to a REAL kid and tell that story.
Here’s one that even involves that rare illness that killed Bruenig’s hypothetical child:
That’s not to say you need to tell the story in this kind of staid news format. You can do more of the narrative work, using the parental recall, photos, medical records and expert interviews to paint a more vivid picture.
Strong interviews with the parents of a child can give you that emotional angst of anxiety, fear and despair. Spending time looking at photos can give you the “favorite blanket” and “watching Bluey” details that paint a picture in the readers’ minds. The experts can walk you through the files so you can describe in detail how each cough wracked the child with pain or how the fever created a mix of burning and chills that couldn’t be sated.
This takes a ton of work. You have to find a case where a kid died, you have to find parents willing to talk, you have to find experts who understand what happened to the kid and you have to spend time gathering granular-level elements through observation. Doing this also puts the reporter at risk of some significant emotional trauma, as they relive the death of a child in such a gut-wrenching way.
So, I can kind of see how it’s more appealing to just go to a handful of experts who can give you the clinical stuff and then just whip together a “Hypothetical ‘You’ Mom” character to tug at the emotional heartstrings of the readers, without fully acknowledging that’s what you did.
However, if you want the reward of the tough story, you really have to take the risks associated with the tough story. Doing it this way only codifies the certainty of people who don’t already believe you and undercuts your standing with people who do.














